ONWARD Support Program Patient Privacy Statement

Privacy Notice

The Program will be administered via an online platform accessed by your treating specialist.

The portal will collect personal information in relation to you, your child or guardian (as applicable) or your nominated carer which may include the following:

• Full name;

• Date of birth;

• Gender;

• Contact telephone number;

• Email address;

• Residential address;

• Postal address; and

• Medical testing results.

By providing your (or your child's or nominated carer’s) personal information to the Administrators, you consent to the personal information being used for the purposes of administration and management of the Program, in particular.

• Receiving the following communications:

SMS and/or email reminders of upcoming requested tests or appointments; 

Information about the Company products and/or to support the use of those products 

• The Administrator, or other nominated Administrators, providing to the Company de-identified reports including your initials, details of the relevant healthcare provider (including details regarding treatment) so the Company can comply with its quality or safety requirements or for audit or inspection purposes. 

The Administrator otherwise reserves the right to use aggregated and de-identified data collected via the Program for internal purposes, including planning and managing resources for the Program, and analysis and research purposes (e.g. to calculate adherence rates). 

The Administrator may disclose this information to third parties in order to promote awareness of the Program and to publish the information in reports or medical publications. Your name will not be identified in any report or publication.

Your personal information will be stored in a Program database which is accessible by your treating specialist and additional users nominated by your treating specialist (e.g. clinic nurses, clinic administrators or other authorised personnel) in accordance with these terms and conditions. Administrators may also disclose your personal information to other persons involved in the Program, such as third-party service providers, sub-contractors approved by the Company. Administrators may use your personal information to contact you as necessary or clarify certain aspects of your personal information or to review your experience or participation in the Program. 

Personal information may be stored on servers located in jurisdictions outside of Australia and you consent to such export and storage. Some of those countries may not offer the same level of privacy protection as in Australia. However, the Company will enter into agreements with its third-party service providers to ensure personal information is secure and adequate data protection is provided. 

You have the right to access, update or correct personal information provided to Company or its Administrators under this Program and/or decline to receive communications from Company or its Administrators. 

To find out how, please contact the ONWARD Support Program on 1800 ONWARD (669 272) or at support@ucbonward.omc.au. 

ONWARD Support Program Patient Safety Statement 

The Company is committed to patient safety. In accordance with regulatory obligations for reporting safety information the Company processes reports of adverse events experienced by patients on Company products when identified by a Company representative (or by a third party acting on behalf of the Company). Company Patient Safety may contact you or your healthcare professional in order to collect further information on the adverse event. This information may be shared with health authorities or other pharmaceutical companies with whom Company has a license agreement, and third parties we work with for the purpose of safety reporting. 

As a consumer participating in this activity sponsored by Company, you confirm that you have read and understood the adverse event collection statement and you agree with it. You understand that information relating to an adverse event with a Company product that is identified during this activity will be forwarded to Company Patient Safety department, for safety reporting. 

You understand that Company’ Patient Safety department may contact your healthcare professional for further information regarding any adverse event identified as part of this activity